Sophie's Science Project: Animated Video & Comic Book
The Harvard Catalyst Regulatory Foundations, Ethics, and Law Program has created an animated video from our comic book “Sophie’s Science Project.” The video can be found here.
The comic book, "Sophie’s Science Project: What is Medical Research?" was developed by Boston Children’s Hospital, Cincinnati Children’s Hospital Medical Center, and the Children’s Hospital of Philadelphia with the goal of educating children about medical research. Our second comic book "BioBank: Questions and Answers", developed by Boston Children’s Hospital and Harvard Catalyst, was recently released to explain in simple terms how biobanks work, how and why samples and information are collected, and how these are used and shared. Both comics can be downloaded below and paper copies of each may be obtained by contacting the IRB Office.
BioBank: Questions and Answers
The purpose of this comic book is to explain in simple terms how biobanks work, how and why samples and information are collected, and how these are used and shared.
Biobank comic book download
Sophie’s Science Project: What is Medical Research?
This comic book was developed with the goal of educating children about medical research. Please feel free to download this comic book and share it with children.
Sophie's science project comic book download
National Institutes of Health website for parents on medical research studies for children
The purpose of the National Institutes of Health website is to provide information for families that includes the following topics:
- Why is research important, how is it different, safety and protections, are there benefits, your right to say no
- Information on the research team, what you might need to ask, and what role kids play in participating
- Information on how studies affect the family and what kids think, what happens if you leave a study or what happens when it ends
- Know what rights you have, where to find information, and terms that you may hear in a study
Children's Hospital Clinical Research Bill of Rights
Children's Hospital is committed to respecting and protecting the rights of its patients and families. We strive to provide care that is sensitive to cultural, racial, religious and other differences. This bill of rights provides information about our commitment to you, and your responsibilities as a member of your child's health care team.
Clinical Research Bill of Rights
Harvard Catalyst Research Participant Resources
The Harvard Catalyst website offers useful information and helpful questions to think about and to ask before deciding to participate in a research study.
OHRP Participating in Human Research and Clinical Trials
The OHRP website provides resources for the public to learn about participating in research and making informed decisions.