Who can be in this study?
Individuals ages 2 and older who were diagnosed with a neurodevelopmental disorder (e.g., autism spectrum disorder, intellectual disability, global developmental delay) and congenital heart disease (CHD). Additionally, one or both biological parents of the child are welcome to provide a sample (saliva or blood), but individuals whose biological parents are unavailable are welcome to participate.
What does study participation involve?
Participation may be done entirely from home and takes less than one hour. Participation includes one virtual visit with the research team, a brief collection of the medical and family history, and saliva or blood sampling for genetic testing. There is no cost to participate. Participants will not receive any compensation for enrolling in this study.
Whom do I contact if I am interested in learning more about this study?
Email zoe.frazier@childrens.harvard.edu or call 617-919-7370.