Project STANDARD: (Structured Approach to Neurodevelopmental Care and Clinical Research Data)

Project STANDARD is a multi-site, international initiative involving pediatric programs across the U.S., Europe, Asia, and Australia. It aims to develop and implement a structured documentation system for clinically meaningful data on children and adolescents with neurodevelopmental and behavioral challenges. The project has two primary goals:

  1. To standardize and improve the clinician experience, efficiency, and quality of clinical documentation.
  2. To build a centralized data repository for structured data that supports research, quality improvement, and precision medicine through the identification of best practices.

What will this change?

Why does this matter for patients and families?

Caring for children with neurodevelopmental and behavioral challenges can be difficult, as doctors must keep detailed records. Project STANDARD aims to improve clinician documentation this by creating a more efficient and organized system, allowing doctors worldwide to learn from each other and ultimately improving care for children everywhere.

Why does this matter for research?

Conditions like ADHD and autism are common, but treatments vary widely, and there is a lack of studies to determine what works best. Current record-keeping is often incomplete or unclear. Project STANDARD seeks to standardize and improve documentation, making it more organized and useful. This will help doctors share effective treatments, enhance research, and improve the precision and effectiveness of patient care globally.

Get involved

If you are a clinician or researcher interested in learning more and potentially joining Project STANDARD, please email justice.clark@childrens.harvard.edu for more information. 

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