This page is dedicated to the Neonatal Encephalopathy research study, one of over 60 studies supported by the Boston Children’s Rare Disease Collaborative (CRDC). For more information about the CRDC, please visit our home page. Established in 2018, the CRDC supports pediatric rare disease research and provides families with genetic diagnoses that enable personalized treatments, including precision medicine and targeted therapies.
Physician in Medicine, Division of Newborn Medicine; Director, Neonatal Neurogenetics Program
Physician in Medicine, Division of Newborn Medicine; Director, Neonatal Neurogenetics Program
Assistant Professor of Pediatrics, Harvard Medical School
Associate Professor of Neurology, Harvard Medical School
The Neonatal Encephalopathy research study was established in 2025 and is led by Drs. Alissa D'Gama and Janet Soul.