Investigators
Divisions
Notable publications by investigators
- Pediatric erythromelalgia from multidisciplinary perspectives: a scoping review.
- Patient-Customized Oligonucleotide Therapy for a Rare Genetic Disease.
- Clinical Characterization of Pediatric Erythromelalgia: A Single-Center Case Series.
Disease support organizations
Creative Healing for Youth in Pain
Creative Healing for Youth in Pain (CHYP) cultivates a supportive online community for youth ages 13-24 and their caregivers while they navigate the challenges of chronic pain. CHYP strives to inspire and empower participants and guide them toward a journey of healing and hope by giving them the tools needed to overcome the obstacles of chronic pain, including creative non-clinical interventions, education and peer support. CHYP aims to provide its participants with community and healing tools without the limitations imposed by geographic location or socioeconomic status.
Meg Foundation
The Meg Foundation empowers families with the skills, strategies, and support they need to manage pain and medical anxiety.
Reflex Sympathetic Dystrophy Syndrome Association
The Reflex Sympathetic Dystrophy Syndrome Association (RSDSA) is a not-for-profit organization with a mission to provide support, education, and hope to all affected by the pain and disability of CRPS/RSD, while driving research to develop better treatments and a cure.
The Coalition Against Pediatric Pain
Founded in 2011 by moms of children with chronic pain and complex medical conditions, The Coalition Against Pediatric Pain (TCAPP) is a nonprofit organization committed to supporting children and familes coping with chronic pain.
Pediatric Pain Warrior
Pediatric Pain Warrior is a program of U.S. Pain Foundation, the leading chronic pain advocacy organization dedicated to serving those who live with conditions that cause chronic pain, as well as their caregivers and care providers.
Trusted sites