Education

Undergraduate School

University of Michigan
1991 Ann Arbor MI

Medical School

University of California, David Geffen School of Medicine
1995 Los Angeles CA

Residency

Cedars Sinai Medical Center
1999 Los Angeles CA

Fellowship

Mattel Children’s Hospital at UCLA
2003 Los Angeles CA

Graduate School

University of California Los Angeles School of Public Health
2005 Los Angeles CA

Publications

  1. Design and rationale of "Antecedents and correlates of well-being in young adults with congenital heart disease in the Boston Circulatory Arrest Study (BCAS-Adult)". Am Heart J. 2025 May 24. View Abstract
  2. Theory-based and Person-centered Approach to Design a Digital Tool for Improving Lifelong Congenital Heart Disease Care. medRxiv. 2025 Apr 01. View Abstract
  3. Acute Effects of Enhanced External Counterpulsation in Adults With Fontan Circulation. JACC Adv. 2025 Mar; 4(3):101591. View Abstract
  4. Evaluating the factor structure of the Wechsler Adult Intelligence Scale, Fourth Edition (WAIS-IV) in adults with congenital heart disease. Clin Neuropsychol. 2024 Dec 31; 1-12. View Abstract
  5. Elevating diversity, inclusion, and health equity in Pediatric Heart Network Scholars grant funding: unique opportunities and lessons learned. Cardiol Young. 2024 Oct; 34(10):2164-2169. View Abstract
  6. Fontan circulation and systemic disease - a retrospective cohort analysis over 35 years of follow-up. Am Heart J. 2025 Jan; 279:40-49. View Abstract
  7. Outcomes in Adult Congenital Heart Disease Patients With Down Syndrome Undergoing a Cardiac Surgical Procedure. Ann Thorac Surg. 2025 Feb; 119(2):398-405. View Abstract
  8. Rationale and design of CHD PULSE: Congenital Heart Disease Project to Understand Lifelong Survivor Experience. Am Heart J. 2024 Dec; 278:150-160. View Abstract
  9. Health Service Use and Costs During Pregnancy Among Privately Insured Individuals With Congenital Heart Disease. JAMA Netw Open. 2024 05 01; 7(5):e2410763. View Abstract
  10. Social Determinants of Health Including Child Opportunity Index Leading to Gaps in Care for Patients With Significant Congenital Heart Disease. J Am Heart Assoc. 2024 Feb 20; 13(4):e028883. View Abstract
  11. Recommendations for Centers Performing Pediatric Heart Surgery in the United States. Ann Thorac Surg. 2023 11; 116(5):871-907. View Abstract
  12. Recommendations for centers performing pediatric heart surgery in the United States. J Thorac Cardiovasc Surg. 2023 12; 166(6):1782-1820. View Abstract
  13. Design and Harmonization Approach for the Multi-Institutional Neurocognitive Discovery Study (MINDS) of Adult Congenital Heart Disease (ACHD) Neuroimaging Ancillary Study: A Technical Note. J Cardiovasc Dev Dis. 2023 Sep 06; 10(9). View Abstract
  14. Recommendations for Centers Performing Pediatric Heart Surgery in the United States. World J Pediatr Congenit Heart Surg. 2023 09; 14(5):642-679. View Abstract
  15. Design of a multi-institutional neurocognitive discovery study in adult congenital heart disease (MINDS-ACHD). Am Heart J. 2023 08; 262:131-139. View Abstract
  16. Development of the Residual Lesion Score for congenital heart surgery: the RAND Delphi methodology. Cardiol Young. 2023 Jun; 33(6):977-990. View Abstract
  17. Disproportionate Negative Career Impact of the COVID-19 Pandemic on Female Pediatric Cardiologists in the Northeast United States. Pediatr Cardiol. 2022 Dec; 43(8):1913-1921. View Abstract
  18. Canadian Cardiovascular Society 2022 Guidelines for Cardiovascular Interventions in Adults With Congenital Heart Disease. Can J Cardiol. 2022 07; 38(7):862-896. View Abstract
  19. Addressing Social Determinants of Health and Mitigating Health Disparities Across the Lifespan in Congenital Heart Disease: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 04 19; 11(8):e025358. View Abstract
  20. T Cell Response to Influenza Vaccination Remains Intact in Adults with Congenital Heart Disease Who Underwent Early Thymectomy. Int J Cardiol Congenit Heart Dis. 2022 Jun; 8. View Abstract
  21. Operational and Ethical Considerations for a National Adult Congenital Heart Disease Database. J Am Heart Assoc. 2022 04 05; 11(7):e022338. View Abstract
  22. Advances in Managing Transition to Adulthood for Adolescents With Congenital Heart Disease: A Practical Approach to Transition Program Design: A Scientific Statement From the American Heart Association. J Am Heart Assoc. 2022 04 05; 11(7):e025278. View Abstract
  23. Transition readiness in congenital heart disease: Are teens and young adults getting the recommended information? Int J Cardiol Congenit Heart Dis. 2022 Mar; 7:100311. View Abstract
  24. Cognitive impairment in adult CHD survivors: A pilot study. Int J Cardiol Congenit Heart Dis. 2021 Dec; 6. View Abstract
  25. Association of Insurance Status With Emergent Versus Nonemergent Hospital Encounters Among Adults With Congenital Heart Disease. J Am Heart Assoc. 2021 10 05; 10(19):e021974. View Abstract
  26. Associations Between Clinical Outcomes and a Recently Proposed Adult Congenital Heart Disease Anatomic and Physiological Classification System. J Am Heart Assoc. 2021 09 21; 10(18):e021345. View Abstract
  27. Atrial pacing in Fontan patients: The effect of transvenous lead on clot burden. Heart Rhythm. 2021 11; 18(11):1860-1867. View Abstract
  28. Association of Damaging Variants in Genes With Increased Cancer Risk Among Patients With Congenital Heart Disease. JAMA Cardiol. 2021 04 01; 6(4):457-462. View Abstract
  29. Differences in perceptions of transition readiness between parents and teens with congenital heart disease: do parents and teens agree? Cardiol Young. 2021 Jun; 31(6):957-964. View Abstract
  30. Difference in the prevalence of intracardiac thrombus on the first presentation of atrial fibrillation versus flutter in the pediatric and congenital heart disease population. J Cardiovasc Electrophysiol. 2020 12; 31(12):3243-3250. View Abstract
  31. Resynchronizing Right and Left Ventricles With Right Bundle Branch Block in the Congenital Heart Disease Population. JACC Clin Electrophysiol. 2020 12; 6(14):1762-1772. View Abstract
  32. Patient Sharing and Health Care Utilization Among Young Adults With Congenital Heart Disease. Med Care Res Rev. 2021 10; 78(5):561-571. View Abstract
  33. Interobserver agreement of the anatomic and physiological classification system for adult congenital heart disease. Am Heart J. 2020 11; 229:92-99. View Abstract
  34. Characteristics of Adults With Congenital Heart Defects in the United States. J Am Coll Cardiol. 2020 07 14; 76(2):175-182. View Abstract
  35. Adult Congenital Heart Disease-Preparing for the Changing Work Force Demand. Cardiol Clin. 2020 Aug; 38(3):283-294. View Abstract
  36. Adverse Pregnancy Conditions Among Privately Insured Women With and Without Congenital Heart Defects. Circ Cardiovasc Qual Outcomes. 2020 06; 13(6):e006311. View Abstract
  37. Transition Readiness in Teens and Young Adults with Congenital Heart Disease: Can We Make a Difference? J Pediatr. 2020 06; 221:201-206.e1. View Abstract
  38. Coronavirus Disease 2019 (COVID-19) Pandemic Implications in Pediatric and Adult Congenital Heart Disease. J Am Heart Assoc. 2020 06 16; 9(12):e017224. View Abstract
  39. Echocardiography-guided determination of reliable atrial pacing in a patient with congenital heart disease. HeartRhythm Case Rep. 2020 Jul; 6(7):445-447. View Abstract
  40. Assessing Pregnancy, Gestational Complications, and Co-morbidities in Women With Congenital Heart Defects (Data from ICD-9-CM Codes in 3 US Surveillance Sites). Am J Cardiol. 2020 03 01; 125(5):812-819. View Abstract
  41. Cancer Risk in Congenital Heart Disease-What Is the Evidence? Can J Cardiol. 2019 Dec; 35(12):1750-1761. View Abstract
  42. Receipt of American Heart Association-Recommended Preconception Health Care Among Privately Insured Women With Congenital Heart Defects, 2007-2013. J Am Heart Assoc. 2019 09 17; 8(18):e013608. View Abstract
  43. Increasing Evidence for and a Word of Caution About an Association Between Cancer and Congenital Heart Disease. JAMA Netw Open. 2019 07 03; 2(7):e196756. View Abstract
  44. Surveillance of Congenital Heart Defects among Adolescents at Three U.S. Sites. Am J Cardiol. 2019 07 01; 124(1):137-143. View Abstract
  45. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. Circulation. 2019 04 02; 139(14):e698-e800. View Abstract
  46. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: Executive Summary: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. Circulation. 2019 04 02; 139(14):e637-e697. View Abstract
  47. Population-based surveillance of congenital heart defects among adolescents and adults: surveillance methodology. Birth Defects Res. 2018 11 15; 110(19):1395-1403. View Abstract
  48. Frontiers in Fontan failure: Innovation and improving outcomes: A conference summary. Congenit Heart Dis. 2019 Mar; 14(2):128-137. View Abstract
  49. A National Population-based Study of Adults With Coronary Artery Disease and Coarctation of the Aorta. Am J Cardiol. 2018 12 15; 122(12):2120-2124. View Abstract
  50. Epidemiology of ACHD: What Has Changed and What is Changing? Prog Cardiovasc Dis. 2018 Sep - Oct; 61(3-4):275-281. View Abstract
  51. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. J Am Coll Cardiol. 2019 04 02; 73(12):e81-e192. View Abstract
  52. 2018 AHA/ACC Guideline for the Management of Adults With Congenital Heart Disease: Executive Summary: A Report of the American College of Cardiology/American Heart Association Task Force on Clinical Practice Guidelines. J Am Coll Cardiol. 2019 04 02; 73(12):1494-1563. View Abstract
  53. A Pilot Study of Inspiratory Muscle Training to Improve Exercise Capacity in Patients with Fontan Physiology. Semin Thorac Cardiovasc Surg. 2018 Winter; 30(4):462-469. View Abstract
  54. Stroke in Adults With Coarctation of the Aorta: A National Population-Based Study. J Am Heart Assoc. 2018 06 01; 7(11). View Abstract
  55. Transition Education: Formative Steps, in Need of Direction. J Am Coll Cardiol. 2018 04 24; 71(16):1778-1780. View Abstract
  56. College students with congenital heart disease: A critical time for transition. J Am Coll Health. 2018 May-Jun; 66(4):324-328. View Abstract
  57. Association of Albuminuria With Major Adverse Outcomes in Adults With Congenital Heart Disease: Results From the Boston Adult Congenital Heart Biobank. JAMA Cardiol. 2018 04 01; 3(4):308-316. View Abstract
  58. Outcomes of Patients With Hypoplastic Left Heart Syndrome Reaching Adulthood After Fontan Palliation: Multicenter Study. Circulation. 2018 02 27; 137(9):978-981. View Abstract
  59. Fontan-Associated Liver Disease: Proceedings from the American College of Cardiology Stakeholders Meeting, October 1 to 2, 2015, Washington DC. J Am Coll Cardiol. 2017 12 26; 70(25):3173-3194. View Abstract
  60. Exposure to Low-Dose Ionizing Radiation From Cardiac Procedures and Malignancy Risk in Adults With Congenital Heart Disease. Circulation. 2018 03 27; 137(13):1334-1345. View Abstract
  61. Development of Quality Metrics in Ambulatory Pediatric Cardiology. J Am Coll Cardiol. 2017 Feb 07; 69(5):541-555. View Abstract
  62. Advancing the Measurement of Care Coordination in Pediatric Behavioral Health. J Dev Behav Pediatr. 2016 10; 37(8):674-84. View Abstract
  63. Prevalence of Cancer in Adults With Congenital Heart Disease Compared With the General Population. Am J Cardiol. 2016 Dec 01; 118(11):1742-1750. View Abstract
  64. Emerging Research Directions in Adult Congenital Heart Disease: A Report From an NHLBI/ACHA Working Group. J Am Coll Cardiol. 2016 Apr 26; 67(16):1956-64. View Abstract
  65. Exposure to Low-Dose Ionizing Radiation From Cardiac Procedures in Patients With Congenital Heart Disease: 15-Year Data From a Population-Based Longitudinal Cohort. Circulation. 2016 Jan 05; 133(1):12-20. View Abstract
  66. Hybrid Approach for Off-Pump Pulmonary Valve Replacement in Patients With a Dilated Right Ventricular Outflow Tract. Ann Thorac Surg. 2015 Nov; 100(5):e99-101. View Abstract
  67. Evaluation of Health Care Quality in Adults with Congenital Heart Disease. Cardiol Clin. 2015 Nov; 33(4):635-41, ix-x. View Abstract
  68. Feasibility of Using Electronic Medical Record Data for Tracking Quality Indicators in Adults with Congenital Heart Disease. Congenit Heart Dis. 2015 Nov-Dec; 10(6):E268-77. View Abstract
  69. Survival of adults with ASD2: a call for a longitudinal clinical registry. Eur Heart J. 2015 Aug 14; 36(31):2036-2038. View Abstract
  70. Electronic medical record integration with a database for adult congenital heart disease: Early experience and progress in automating multicenter data collection. Int J Cardiol. 2015 Oct 01; 196:178-82. View Abstract
  71. Task Force 6: Pediatric Cardiology Fellowship Training in Adult Congenital Heart Disease. J Am Coll Cardiol. 2015 Aug 11; 66(6):723-31. View Abstract
  72. Task Force 6: Pediatric Cardiology Fellowship Training in Adult Congenital Heart Disease. SPCTPD/ACC/AAP/AHA. Circulation. 2015 Aug 11; 132(6):e91-8. View Abstract
  73. 2015 SPCTPD/ACC/AAP/AHA Training Guidelines for Pediatric Cardiology Fellowship Programs (Revision of the 2005 Training Guidelines for Pediatric Cardiology Fellowship Programs). J Am Coll Cardiol. 2015 Mar 13. View Abstract
  74. Current and future status of adult congenital training in North America. Am J Cardiol. 2015 Apr 15; 115(8):1151-3. View Abstract
  75. Clinicians' perspectives on patient satisfaction in adult congenital heart disease clinics--a dimension of health care quality whose time has come. Congenit Heart Dis. 2015 Mar-Apr; 10(2):128-36. View Abstract
  76. Transition in congenital heart disease: it takes a village. Heart. 2014 Jul; 100(14):1075-6. View Abstract
  77. Clinical research priorities in adult congenital heart disease. Int J Cardiol. 2014 Feb 15; 171(3):351-60. View Abstract
  78. Heart failure in pregnant women with cardiac disease: data from the ROPAC. Heart. 2014 Feb; 100(3):231-8. View Abstract
  79. Building quality indicators to improve care for adults with congenital heart disease. J Am Coll Cardiol. 2013 Dec 10; 62(23):2244-53. View Abstract
  80. Public health science agenda for congenital heart defects: report from a Centers for Disease Control and Prevention experts meeting. J Am Heart Assoc. 2013 Aug 28; 2(5):e000256. View Abstract
  81. Improving heart disease knowledge and research participation in adults with congenital heart disease (the Health, Education and Access Research Trial: HEART-ACHD). Int J Cardiol. 2013 Oct 09; 168(4):3236-40. View Abstract
  82. Prevalence and predictors of gaps in care among adult congenital heart disease patients: HEART-ACHD (The Health, Education, and Access Research Trial). J Am Coll Cardiol. 2013 May 28; 61(21):2180-4. View Abstract
  83. Left and right ventricular diastolic function in adults with surgically repaired tetralogy of Fallot: a multi-institutional study. Can J Cardiol. 2013 Jul; 29(7):866-72. View Abstract
  84. Hospitalizations and mortality in the United States for adults with Down syndrome and congenital heart disease. Am J Cardiol. 2013 Apr 01; 111(7):1046-51. View Abstract
  85. Aortic root dilatation in adults with surgically repaired tetralogy of fallot: a multicenter cross-sectional study. Circulation. 2013 Jan 15; 127(2):172-9. View Abstract
  86. Best practices in managing transition to adulthood for adolescents with congenital heart disease: the transition process and medical and psychosocial issues: a scientific statement from the American Heart Association. Circulation. 2011 Apr 05; 123(13):1454-85. View Abstract
  87. Prevalence of left ventricular systolic dysfunction in adults with repaired tetralogy of fallot. Am J Cardiol. 2011 Apr 15; 107(8):1215-20. View Abstract
  88. From numbers to guidelines. Prog Cardiovasc Dis. 2011 Jan-Feb; 53(4):239-46. View Abstract
  89. Arrhythmia burden in adults with surgically repaired tetralogy of Fallot: a multi-institutional study. Circulation. 2010 Aug 31; 122(9):868-75. View Abstract
  90. The CALF (Congenital Heart Disease in Adults Lower Extremity Systemic Venous Health in Fontan Patients) study. J Am Coll Cardiol. 2010 Jul 06; 56(2):144-50. View Abstract
  91. Echo rounds: intramural left coronary artery. Anesth Analg. 2010 Aug; 111(2):354-7. View Abstract
  92. Electrocardiogram screening of infants for long QT syndrome: survey of pediatric cardiologists in North America. J Electrocardiol. 2010 Jan-Feb; 43(1):4-7. View Abstract
  93. State of the science: promoting self-care in persons with heart failure: a scientific statement from the American Heart Association. Circulation. 2009 Sep 22; 120(12):1141-63. View Abstract
  94. Distorted cardiac anatomy: the congenital (R)evolution. J Am Soc Echocardiogr. 2009 Feb; 22(2):141-4. View Abstract
  95. Repaired tetralogy of Fallot in the adult: monitoring and management. Heart. 2008 Dec; 94(12):1663-9. View Abstract
  96. An unusual presentation in a patient with Shone's anomaly. Anesth Analg. 2008 Dec; 107(6):1825-7. View Abstract
  97. Missed diagnosis of critical congenital heart disease. Arch Pediatr Adolesc Med. 2008 Oct; 162(10):969-74. View Abstract
  98. Multicenter research in adult congenital heart disease. Int J Cardiol. 2008 Sep 26; 129(2):155-9. View Abstract
  99. Considerations of a one-and-one-half ventricle repair in a 47-year-old patient. Congenit Heart Dis. 2008 Jan-Feb; 3(1):69-72. View Abstract
  100. Intraoperative pulmonary artery stenting: an alternative technique for the management of pulmonary artery stenosis. Ann Thorac Surg. 2007 Oct; 84(4):1338-41; discussion 1342. View Abstract
  101. Ebstein's anomaly of the tricuspid valve. Curr Cardiol Rep. 2007 Jul; 9(4):336-42. View Abstract
  102. Changes in hospitalization patterns among patients with congenital heart disease during the transition from adolescence to adulthood. J Am Coll Cardiol. 2007 Feb 27; 49(8):875-82. View Abstract
  103. Current practice of exercise stress testing among pediatric cardiology and pulmonology centers in the United States. Pediatr Cardiol. 2006 Jan-Feb; 27(1):110-116. View Abstract
  104. Variations in adult congenital heart disease training in adult and pediatric cardiology fellowship programs. J Am Coll Cardiol. 2005 Sep 06; 46(5):893-8. View Abstract
  105. Frequency of aortic root dilation in children with a bicuspid aortic valve. Am J Cardiol. 2004 Nov 15; 94(10):1337-40. View Abstract
  106. Altered cerebral dominance in atopy and in children of asthmatic mothers. Ann N Y Acad Sci. 1992 Apr 15; 650:25-9. View Abstract

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