Information

Related Research Units

Emergency Medicine Research
Computational Health Informatics Program Research

Publications

  1. Case 17-2022: A 17-Year-Old Boy with Chest Pain. Reply. N Engl J Med. 2022 09 15; 387(11):1051-1052. View Abstract
  2. Case 17-2022: A 17-Year-Old Boy with Chest Pain. N Engl J Med. 2022 06 09; 386(23):2222-2231. View Abstract
  3. New-onset hypogammaglobulinaemia and infectious complications associated with rituximab use in childhood-onset rheumatic diseases. Rheumatology (Oxford). 2022 04 11; 61(4):1610-1620. View Abstract
  4. The importance of rigorous methods in observational comparative effectiveness studies of rare diseases: comment on the article by Ruperto et al. Arthritis Rheumatol. 2022 05; 74(5):912-913. View Abstract
  5. Outcomes of SARS-CoV-2 infection among children and young people with pre-existing rheumatic and musculoskeletal diseases. Ann Rheum Dis. 2022 07; 81(7):998-1005. View Abstract
  6. Feasibility and Efficacy of Online Strategies to Recruit Parents of Children With Rheumatic Diseases for Research. ACR Open Rheumatol. 2022 May; 4(5):410-416. View Abstract
  7. Using the Electronic Health Record to Enhance Care in Pediatric Rheumatology. Rheum Dis Clin North Am. 2022 02; 48(1):245-258. View Abstract
  8. Characterisation of paediatric pulmonary hypertensive vascular disease from the PPHNet Registry. Eur Respir J. 2022 01; 59(1). View Abstract
  9. Optimizing the Start Time of Biologics in Polyarticular Juvenile Idiopathic Arthritis: A Comparative Effectiveness Study of Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans. Arthritis Rheumatol. 2021 10; 73(10):1898-1909. View Abstract
  10. Improved Disease Course Associated With Early Initiation of Biologics in Polyarticular Juvenile Idiopathic Arthritis: Trajectory Analysis of a Childhood Arthritis and Rheumatology Research Alliance Consensus Treatment Plans Study. Arthritis Rheumatol. 2021 10; 73(10):1910-1920. View Abstract
  11. Claims-Based Algorithms for Identifying Patients With Pulmonary Hypertension: A Comparison of Decision Rules and Machine-Learning Approaches. J Am Heart Assoc. 2020 10 20; 9(19):e016648. View Abstract
  12. Validation of an Electronic Health Record-Based Suicide Risk Prediction Modeling Approach Across Multiple Health Care Systems. JAMA Netw Open. 2020 03 02; 3(3):e201262. View Abstract
  13. A federated EHR network data completeness tracking system. J Am Med Inform Assoc. 2019 07 01; 26(7):637-645. View Abstract
  14. Racial and Ethnic Differences in Pediatric Pulmonary Hypertension: An Analysis of the Pediatric Pulmonary Hypertension Network Registry. J Pediatr. 2019 08; 211:63-71.e6. View Abstract
  15. The Association of Black Cardiologists (ABC) Cardiovascular Implementation Study (CVIS): A Research Registry Integrating Social Determinants to Support Care for Underserved Patients. Int J Environ Res Public Health. 2019 05 10; 16(9). View Abstract
  16. The Ad-Hoc Uncertainty Principle of Patient Privacy. AMIA Jt Summits Transl Sci Proc. 2018; 2017:132-138. View Abstract
  17. Adding patient-reported outcomes to a multisite registry to quantify quality of life and experiences of disease and treatment for youth with juvenile idiopathic arthritis. J Patient Rep Outcomes. 2018; 2. View Abstract
  18. A Computable Phenotype Improves Cohort Ascertainment in a Pediatric Pulmonary Hypertension Registry. J Pediatr. 2017 09; 188:224-231.e5. View Abstract
  19. Learning a Comorbidity-Driven Taxonomy of Pediatric Pulmonary Hypertension. Circ Res. 2017 Aug 04; 121(4):341-353. View Abstract
  20. The new Childhood Arthritis and Rheumatology Research Alliance (CARRA) registry: design, rationale, and characteristics of patients enrolled in the first 12 months. Pediatr Rheumatol Online J. 2017 Apr 17; 15(1):30. View Abstract
  21. C3-PRO: Connecting ResearchKit to the Health System Using i2b2 and FHIR. PLoS One. 2016; 11(3):e0152722. View Abstract
  22. Supporting Multi-sourced Medication Information in i2b2. AMIA Annu Symp Proc. 2015; 2015:747-55. View Abstract
  23. Scalable Collaborative Infrastructure for a Learning Healthcare System (SCILHS): architecture. J Am Med Inform Assoc. 2014 Jul-Aug; 21(4):615-20. View Abstract
  24. A167: variations in patterns of care across pediatric rheumatic diseases in the childhood arthritis & rheumatology alliance network registry. Arthritis Rheumatol. 2014 Mar; 66 Suppl 11:S215-6. View Abstract
  25. Using registries to identify adverse events in rheumatic diseases. Pediatrics. 2013 Nov; 132(5):e1384-94. View Abstract
  26. Next-generation registries: fusion of data for care, and research. AMIA Jt Summits Transl Sci Proc. 2013; 2013:164-7. View Abstract
  27. An i2b2-based, generalizable, open source, self-scaling chronic disease registry. J Am Med Inform Assoc. 2013 Jan 01; 20(1):172-9. View Abstract
  28. Association between pediatric psoriasis and the metabolic syndrome. J Am Acad Dermatol. 2012 Jun; 66(6):1012-3. View Abstract
  29. Somatic KRAS mutations associated with a human nonmalignant syndrome of autoimmunity and abnormal leukocyte homeostasis. Blood. 2011 Mar 10; 117(10):2883-6. View Abstract

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