Fabienne Bourgeois

Publications

1. The substance-exposed birthing person-infant/child dyad and health information exchange in the United States. J Am Med Inform Assoc. 2025 Jan 02. View Abstract
2. Acceptability of Adolescent Portal Access Policies to Parents and Adolescents: A Delphi Study. J Adolesc Health. 2024 Nov 28. View Abstract
3. Patient and family contributions to improve the diagnostic process through the OurDX electronic health record tool: a mixed method analysis. BMJ Qual Saf. 2024 Aug 16; 33(9):597-608. View Abstract
4. Providing Adolescents with Access to Online Patient Portals: Interviews with Parent-Adolescent Dyads. J Pediatr. 2024 Jul; 270:114015. View Abstract
5. What's going well: a qualitative analysis of positive patient and family feedback in the context of the diagnostic process. Diagnosis (Berl). 2024 Feb 01; 11(1):63-72. View Abstract
6. Variation in pediatric and adolescent electronic health data sharing practices under the 21st Century Cures Act. J Am Med Inform Assoc. 2023 11 17; 30(12):2021-2027. View Abstract
7. Partnering with Patients and Families to Improve Diagnostic Safety through the OurDX Tool: Effects of Race, Ethnicity, and Language Preference. Appl Clin Inform. 2023 10; 14(5):903-912. View Abstract
8. A Year of Inpatient Telehealth: Lessons From the COVID-19 Pandemic. Hosp Pediatr. 2023 11 01; 13(11):e333-e338. View Abstract
9. Engaging Adolescents in Using Online Patient Portals. JAMA Netw Open. 2023 08 01; 6(8):e2330483. View Abstract
10. Challenges to Developing and Implementing Policies for Adolescent Online Portal Access. Pediatrics. 2023 06 01; 151(6). View Abstract
11. Partnering with patients and families living with chronic conditions to coproduce diagnostic safety through OurDX: a previsit online engagement tool. J Am Med Inform Assoc. 2023 03 16; 30(4):692-702. View Abstract
12. A Patient Portal Intervention to Promote Adolescent and Young Adult Self-Management Skills. Acad Pediatr. 2023 08; 23(6):1252-1258. View Abstract
13. A Prescription for Internet: Feasibility of a Tablet Loaner Program to Address Digital Health Inequities. Appl Clin Inform. 2023 03; 14(2):273-278. View Abstract
14. Patient Identification of Diagnostic Safety Blindspots and Participation in "Good Catches" Through Shared Visit Notes. Milbank Q. 2022 12; 100(4):1121-1165. View Abstract
15. Inpatient Telehealth Experience of Patients With Limited English Proficiency: Cross-sectional Survey and Semistructured Interview Study. JMIR Form Res. 2022 Apr 19; 6(4):e34354. View Abstract
16. Diagnostic error experiences of patients and families with limited English-language health literacy or disadvantaged socioeconomic position in a cross-sectional US population-based survey. BMJ Qual Saf. 2023 11; 32(11):644-654. View Abstract
17. Tackling Ambulatory Safety Risks Through Patient Engagement: What 10,000 Patients and Families Say About Safety-Related Knowledge, Behaviors, and Attitudes After Reading Visit Notes. J Patient Saf. 2021 12 01; 17(8):e791-e799. View Abstract
18. Attitudes, experiences, and safety behaviours of adolescents and young adults who read visit notes: Opportunities to engage patients early in their care. Future Healthc J. 2021 Nov; 8(3):e585-e592. View Abstract
19. Twenty-First Century Cures Act Final Rule and Adolescent Health Care: Leadership Education in Adolescent Health (LEAH) Program Experiences. J Adolesc Health. 2021 12; 69(6):873-877. View Abstract
20. Filling a gap in safety metrics: development of a patient-centred framework to identify and categorise patient-reported breakdowns related to the diagnostic process in ambulatory care. BMJ Qual Saf. 2022 07; 31(7):526-540. View Abstract
21. Speaking up about patient-perceived serious visit note errors: Patient and family experiences and recommendations. J Am Med Inform Assoc. 2021 03 18; 28(4):685-694. View Abstract
22. Preserving privacy for pediatric patients and families: use of confidential note types in pediatric ambulatory care. J Am Med Inform Assoc. 2020 11 01; 27(11):1705-1710. View Abstract
23. Rapid Implementation of an Inpatient Telehealth Program during the COVID-19 Pandemic. Appl Clin Inform. 2020 May; 11(3):452-459. View Abstract
24. Assessment of: self-management skills towards transition readiness and patient portal use among Hispanic adolescent and young adult patients. BMJ Paediatr Open. 2020; 4(1):e000658. View Abstract
25. A patient and family reporting system for perceived ambulatory note mistakes: experience at 3 U.S. healthcare centers. J Am Med Inform Assoc. 2019 12 01; 26(12):1566-1573. View Abstract
26. OpenNotes: Toward a Participatory Pediatric Health System. Pediatrics. 2018 10; 142(4). View Abstract
27. The Importance of Visit Notes on Patient Portals for Engaging Less Educated or Nonwhite Patients: Survey Study. J Med Internet Res. 2018 05 24; 20(5):e191. View Abstract
28. Ethical Challenges Raised by OpenNotes for Pediatric and Adolescent Patients. Pediatrics. 2018 06; 141(6). View Abstract
29. Empowering Informal Caregivers with Health Information: OpenNotes as a Safety Strategy. Jt Comm J Qual Patient Saf. 2018 03; 44(3):130-136. View Abstract
30. A Mobile App Development Guideline for Hospital Settings: Maximizing the Use of and Minimizing the Security Risks of "Bring Your Own Devices" Policies. JMIR Mhealth Uhealth. 2016 May 11; 4(2):e50. View Abstract
31. From development to implementation-A smartphone and email-based discharge follow-up program for pediatric patients after hospital discharge. Healthc (Amst). 2016 Jun; 4(2):109-15. View Abstract
32. A Mobile, Collaborative, Real Time Task List for Inpatient Environments. Appl Clin Inform. 2015; 6(4):677-83. View Abstract
33. Preserving patient privacy and confidentiality in the era of personal health records. Pediatrics. 2015 May; 135(5):e1125-7. View Abstract
34. Peripherally inserted central catheters. Pediatr Emerg Care. 2011 Jun; 27(6):556-61; quiz 562-3. View Abstract
35. Patients treated at multiple acute health care facilities: quantifying information fragmentation. Arch Intern Med. 2010 Dec 13; 170(22):1989-95. View Abstract
36. Impact of a computerized template on antibiotic prescribing for acute respiratory infections in children and adolescents. Clin Pediatr (Phila). 2010 Oct; 49(10):976-83. View Abstract
37. Mychildren's: integration of a personally controlled health record with a tethered patient portal for a pediatric and adolescent population. AMIA Annu Symp Proc. 2009 Nov 14; 2009:65-9. View Abstract
38. Whose personal control? Creating private, personally controlled health records for pediatric and adolescent patients. J Am Med Inform Assoc. 2008 Nov-Dec; 15(6):737-43. View Abstract
39. Patients treated across multiple sites of care: a case for personally controlled health records. AMIA Annu Symp Proc. 2007 Oct 11; 881. View Abstract
40. Access controls for a pediatric personally controlled health record. AMIA Annu Symp Proc. 2007 Oct 11; 1131. View Abstract
41. A proposed legal framework for addressing privacy for patient controlled health records in pediatrics. AMIA Annu Symp Proc. 2006; 861. View Abstract
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