Executive Summary of Society of Critical Care Medicine 2026 Guidelines on the Care and Management of Pediatric and Neonatal Intensive Care Patients at the End of Life. Pediatr Crit Care Med. 2026 Apr 01; 27(4):487-493. View Abstract
Society of Critical Care Medicine 2026 Guidelines on the Care and Management of Pediatric and Neonatal Intensive Care Patients at the End of Life. Pediatr Crit Care Med. 2026 Apr 01; 27(4):518-536. View Abstract
Palliative Care in Children With Severe Neurological Impairment: The PediQUEST Refine Case Series. J Pain Symptom Manage. 2026 Jul; 72(1):e35-e49. View Abstract
Advancing child health through applied qualitative research. EClinicalMedicine. 2026 Feb; 92:103736. View Abstract
Pediatric Palliative Care Consultation in the PICU Following Out-of-Hospital Cardiac Arrest: Analysis of the U.S. Pediatric Health Information Systems Database, 2013-2023. Pediatr Crit Care Med. 2026 Jan 01; 27(1):14-24. View Abstract
"Leave No Question Unanswered": Nurses' Role in Preparing Children's Families During End-of-Life Care. Am J Crit Care. 2025 Sep 01; 34(5):380-384. View Abstract
Pediatric Palliative Care Subcompetencies for Pediatric Critical Care Medicine Fellowship Trainees. Pediatr Crit Care Med. 2025 Aug 01; 26(8):e1063-e1069. View Abstract
Navigating Time-Critical Decisions in Pediatric Critical Care: A Proactive Communication Guide for Cultivating Prognostic Awareness. J Palliat Med. 2025 Nov; 28(11):1500-1506. View Abstract
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Development of an Interprofessional Clinician Training in Pediatric Serious Illness Communication. J Palliat Med. 2025 Jun; 28(6):716-723. View Abstract
Feasibility of a Serious Illness Communication Program for Pediatric Advance Care Planning. JAMA Netw Open. 2024 07 01; 7(7):e2424626. View Abstract
"At Least I Can Push this Morphine": PICU Nurses' Approaches to Suffering Among Dying Children. J Pain Symptom Manage. 2024 Aug; 68(2):132-141.e2. View Abstract
Reflecting Upon Our Stories: The Compendium of Narratives in Pediatric Critical Care Medicine. Pediatr Crit Care Med. 2024 Jul 01; 25(7):638-642. View Abstract
Economic Hardship at the End of Life for Families of Children With Complex Chronic Conditions. J Pain Symptom Manage. 2024 04; 67(4):e313-e319. View Abstract
The roles of preparation, location, and palliative care involvement in parent-perceived child suffering at the end of life. J Pediatr Nurs. 2023 Sep-Oct; 72:e166-e173. View Abstract
Parent Preferences and Experiences in Advance Care Planning in the Neonatal Intensive Care Unit. Am J Perinatol. 2024 05; 41(S 01):e1783-e1791. View Abstract
Advance Care Planning and Parent-Reported End-of-Life Outcomes in the Neonatal Intensive Care Unit. Am J Perinatol. 2024 05; 41(S 01):e1657-e1667. View Abstract
The Case for Advance Care Planning in the NICU. Pediatrics. 2022 12 01; 150(6). View Abstract
Relationships and Resources Supporting Children With Serious Illness and Their Parents. Hosp Pediatr. 2022 09 01; 12(9):832-842. View Abstract
An Automatic Pediatric Palliative Care Consultation for Children Supported on Extracorporeal Membrane Oxygenation: A Survey of Perceived Benefits and Barriers. J Palliat Med. 2022 06; 25(6):952-957. View Abstract
Bereaved Parent Perspectives on the Benefits and Burdens of Technology Assistance among Children with Complex Chronic Conditions. J Palliat Med. 2022 02; 25(2):250-258. View Abstract
Is this as good as it gets? Implications of an asymptotic mortality decline and approaching the nadir in pediatric intensive care. Eur J Pediatr. 2022 Feb; 181(2):479-487. View Abstract
Symptoms and Suffering at End of Life for Children With Complex Chronic Conditions. J Pain Symptom Manage. 2022 01; 63(1):88-97. View Abstract
Clinical Care Strategies That Support Parents of Children With Complex Chronic Conditions. Pediatr Crit Care Med. 2021 07 01; 22(7):595-602. View Abstract
The Words We Say. Pediatr Crit Care Med. 2021 05 01; 22(5):499-500. View Abstract
Factors Affecting Recruitment and Participation of Bereaved Parents in Research: A Brief Report. J Pain Symptom Manage. 2021 09; 62(3):e213-e217. View Abstract
Clinician Identified Barriers and Strategies for Advance Care Planning in Seriously Ill Pediatric Patients. J Pain Symptom Manage. 2021 09; 62(3):e100-e111. View Abstract
Timing of Co-occurring Chronic Conditions in Children With Neurologic Impairment. Pediatrics. 2021 02; 147(2). View Abstract
Weighing Distress and Benefit: Understanding the Research Participation Experiences of Bereaved Parents of Children With Complex Chronic Conditions. J Pain Symptom Manage. 2021 07; 62(1):39-47.e1. View Abstract
Toddler With New Onset Diabetes and Atypical Hemolytic-Uremic Syndrome in the Setting of COVID-19. Pediatrics. 2021 02; 147(2). View Abstract
Development of a Stakeholder Driven Serious Illness Communication Program for Advance Care Planning in Children, Adolescents, and Young Adults with Serious Illness. J Pediatr. 2021 02; 229:247-258.e8. View Abstract
A Breather during the Time of Breathlessness. J Palliat Med. 2021 02; 24(2):289. View Abstract
"I Could Never Prepare for Something Like the Death of My Own Child": Parental Perspectives on Preparedness at End of Life for Children With Complex Chronic Conditions. J Pain Symptom Manage. 2020 12; 60(6):1154-1162.e1. View Abstract
Chronic Medication Use in Children Insured by Medicaid: A Multistate Retrospective Cohort Study. Pediatrics. 2019 04; 143(4). View Abstract
Association of Home Respiratory Equipment and Supply Use with Health Care Resource Utilization in Children. J Pediatr. 2019 04; 207:169-175.e2. View Abstract
Advance Care Planning and Parent-Reported End-of-Life Outcomes in Children, Adolescents, and Young Adults With Complex Chronic Conditions. Crit Care Med. 2019 01; 47(1):101-108. View Abstract
Patterns of Care at the End of Life for Children and Young Adults with Life-Threatening Complex Chronic Conditions. J Pediatr. 2018 02; 193:196-203.e2. View Abstract
Medication Reconciliation Failures in Children and Young Adults With Chronic Disease During Intensive and Intermediate Care. Pediatr Crit Care Med. 2017 Apr; 18(4):370-377. View Abstract
Suspected Cerebral Edema in Diabetic Ketoacidosis: Is There Still a Role for Head CT in Treatment Decisions? Pediatr Crit Care Med. 2017 Mar; 18(3):207-212. View Abstract
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545: END-OF-LIFE CARE FOR CHILDREN WITH MEDICAL COMPLEXITY: DOES ADVANCE CARE PLANNING MATTER? Crit Care Med. 2016 Dec; 44(12 Suppl 1):213. View Abstract
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